Donna & Barry beat heart disease together Donna & Barry beat heart disease together

Donna, a 57-year-old active social worker, faced sudden heart failure in 2014 due to giant cell myocarditis, leaving her with only 30% heart function. As her condition worsened, her husband Barry suffered a heart attack, complicating their lives. After a successful heart transplant, Donna gradually regained her strength, and the couple remains active, cherishing family moments and advocating for heart health.

Two weeks to live

“You are having a heart attack right now,” doctors told Donna Hart in the emergency department. That was December, 2014. After eight days in intensive care, Donna heard the words heart failure for the first time.

She struggled to understand the diagnosis. At 57, she worked full-time as a social worker and was fitter than many 20-year-olds. She shares a passion for physical activity with her husband, Barry Tsuruda. Together they logged thousands of kilometres on their bikes each year, with local cycling groups near their home in Milton, Ont.

Eventually Donna got a diagnosis of heart failure caused by giant cell myocarditis, a rare type of inflammation of the heart with a dire prognosis: Most people survive only five months without a new heart. Donna’s heart was functioning at just 30% capacity, so her organs and muscles were not getting all the oxygen and nutrients they needed.

Donna’s health went downhill fast. She was sent to the Peter Munk Cardiac Centre at Toronto General Hospital, where tests revealed her heart function had fallen even further, to 13%. “Three weeks earlier, I had 30%,” she says. “I’m not a math whiz, but I could figure out I had two weeks to live.”

“If you leave again, your other organs will fail, and you will have to go into palliative care,” her doctors told her. Only a heart transplant would save her life.

Barry having a heart attack

So the wait began for a new heart. Then one spring day, Barry was out for a 25-km ride with his cycling club. “About halfway through, I felt really, really tired,” he recalls. “I actually lay down on the side of the road to rest. Then I rode the 10 km back to where I had parked and drove home.” 

 Luckily, her daughter was home. She took him to emergency, where nurses told Barry, “You’re having a heart attack.”

Barry had surgery to implant five stents in his blocked arteries, spending five days in intensive care. With both parents in hospital, their son, Ryan, had to take on power-of-attorney for both. That was hard for the family, but the couple managed to keep smiling as they texted each other pictures comparing their hospital meals.

Finally, less than a week after Barry’s surgery and one day after Mother’s Day, the family got the news they wanted: There was a heart for Donna.

Heart transplants in Canada

Every year about 180 adult heart transplants are performed in Canada. For patients like Donna, with end-stage heart failure, it’s the only cure. Research has greatly improved outcomes since 1968, when Canada’s first heart transplant was performed.

Dr. Sharon Chih is a cardiologist specializing in heart transplant. With support from Heart & Stroke donors, she is researching ways to improve outcomes by earlier detection of a complication called cardiac allograft vasculopathy or CAV. It affects up to half of heart transplant patients within 10 years.

Getting back on her bike

While it’s miraculous, a heart transplant is not, for most patients, a ticket back to their old lives. For Donna, recovering after the transplant took time. “They tell you it’s a tough first year, but I found it was a tough 18 months,” she says.

She slowly regained her strength, starting with short walks; by June, she was riding her bike around the block. In fact, she and Barry have become regular participants in Heart & Stroke Ride for Heart each June, raising funds for life-saving research.

Determined to do anything to maintain their health, Donna and Barry now have annual visits to their cardiologists. Barry’s experience of having a heart attack without pain (just debilitating fatigue) has also helped others recognize the signs of heart attack and advocate for themselves to get the care they need.

Marking 39 years of marriage, the couple has a lot going on. They’re keeping active and outdoors, cycling, hiking, camping and fishing, like they’ve always done. Their daughter, now Dr. Kaitlyn Tsuruda, completed her PhD in Epidemiology. Their son Ryan and his wife have started a family - a daughter, Ada - and a baby on the way. “Being a grandparent is so much fun,” Donna says. They’re certainly glad they haven’t missed any of it.